July, 2015

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Phase III clinical trial announced!

Phase III clinical trials to start on first promising drug treatment to reduce the neurological symptoms of A-T!!!

Erydel announces phase III clinical trail of EryDex

 

 

Wifflemania 2015!

Thank you to Andy Stern for again hosting and to all the sponsors, teams, family and friends who came out to support Wifflemania 7 in Monroe Township, NJ on June 20th! It was an honor to have the Akian family there and for Avi to throw out the first pitch to get the day started!! Funds raised have already been received and allocated towards medical research of A-T! We are looking forward to another successful Wifflemania in 2016!!

Over $500 raised for A-T research!!

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6th Annual Pasta Bar for a Cure of A-T, registration open!

The 6th Annual Pasta Bar for a Cure of A-T is OPEN for ticket & sponsorship registration at www.bidpal.net/pb4at! This years event, Oct 17th, is again on Dearborn St. in Englewood, FL under the beautiful tents & lights from US Tent Rental Dinner will feature our signature pasta experience by your favorite cooks, wine bar by Vino Loco Gourmet (commemorative wine glass provided) and decadent dessert by Ciao Gelato Venice Sarasota. Local favorite, Tropical Ave., is back to get you on the dance floor & Hello Gorgeous Photobooth will be there with props to snap fun pics (complimentary event photo postcards will be auto-printed for you to take home!). Our silent auction is moving to the web and will be open for on-line bidding starting October 10th, 2015 (Item donations greatly appreciated!) Looking forward to seeing everyone there for our most successful year yet!!