Bradenton Macaroni Kid, July 21st 2016… Meet our Mom on a Mission this week, Samantha Dzembo!
Research update: The A-T Children’s Project (www.atcp.org) has launched the Global A-T Family Data Platform & Genome Sequencing Project, a database of clinical records and the DNA sequencing results of children diagnosed with A-T from all over the world. This information will readily provide scientists/researchers information during their quest for a formal treatment & cure of A-T! Last year, due to our generous donors and successful fundraisers, WFF was able to contribute $40,000 to this project for the genome testing! This is very exciting news which keeps hope of a cure for A-T a reality! Thank you donors and THANK YOU A-T Children’s Project for making this possible! Visit http://www.atcp.org/DataPlatform for full details! #dollarsatwork #hope #cureforataxiatelangiectasia #teamconnor
The 7th Annual Pasta Bar for a cure is announced!
This years silent auction will again be online! Bid from anywhere in the U.S.! Preview is up and items will be added as they are received… bidding starts 10/01 and closes 10/15 at 8pm at www.bidpal.net/pastabar7. #pb4at
Thank you to all who come to Danny P. Ryan Field today to help Wobbly Feet Foundation #StrikeOutAT
This event featured Wiffle ball teams, great raffle prizes & giveaways. Official WiffleMania 8 T-shirts are still available for just $10!
HUGE thanks to Founding Fathers Andy Stern and Vinny Small, UBS Bank NYC (Nikita Stern), all event sponsors, those who played, volunteered, cheered, donated helping to raise $1150.00 for Wobbly Feet!!
Today, Executive Director Nick Dzembo accepted a check for $216.40 from Tatum Ridge Elementary School. Special thank you to Julia Wood for suggesting, and her student council for accepting Wobbly Feet as the beneficiary of their Blaze Pizza fundraiser! We are honored and are putting these dollars to work immediately!
Not only did Julia help raise these funds for Wobbly Feet, but she has written an essay on A-T! She has won her school essay contest and is moving on to the district competition! We are so proud of you Julia! Thank you for raising not only $$ but awareness for Connor and all others with A-T!
Thank you to all who supported Wobbly Feet Foundation in 2015. Because of YOU we had our best year yet raising over $70,871 for research!!
Team Connor, Disney Wine and Dine Half Marathon (Orlando, Fl)- $1,920.00
Edith Mosolino Memorial Fund- $600.00
Pasta Bar for a Cure of A-T, October 2014 (Englewood, Fl)- $38,000
Greens for Genes Golf Tournament, November 2014 (Sarasota, Fl)- $24,000
Wifflemania, May 2014 (Monroe Township, NJ)- $500.00
Company matching programs- $200.00
Misc donations: $5,000+
Looking forward to an even more successful 2016!
There is STILL TIME to make your 2015 donation count… click here to make your tax-deductible donation now! DONATE NOW!
As 2016 comes to a close, families of a child with Ataxia Telangiectasia are hopeful. We’re hopeful because the dollars raised throughout the year, through hard work/grass-root efforts, IS making a difference! Please read the below letter from the President and Founder of the national foundation for Ataxia Telangiectasia, the A-T Children’s Project…
📌 MESSAGE FROM BRAD MARGUS,
As you plan your year-end giving, we know that there are a lot of good causes out there, but please consider supporting the A-T Children’s Project.
We really need your help right now so that we can jump on new scientific opportunities to solve the problems A-T kids have with lost muscle control, cancer, immune deficiencies and lung problems.
Your help will enable our scientists to make additional progress in 2016, especially toward treatments that may help the neurological problems of A-T.
Scientists can now make stem cells from A-T kids’ skin and blood cells and then turn them into brain cells that can serve as disease models and possibly treatments. Emerging gene editing technologies such as CRISPR-Cas9 make a host of new experiments possible. Breakthoughs in whole-genome sequencing may help us find genes that determine the severity of A-T. And, improved imaging approaches may reveal defective brain circuitry in A-T.
It kills me that I can’t tell you today that we’ve found a treatment for children with A-T, including my sons Jarrett and Quinn. But I assure you that we are as driven and relentless as ever and will never slow down until we can give A-T kids the lives that they deserve.
I wish you and your family a happy and healthy 2016. We look forward to keeping you posted on our research advances.
All the best,
Volunteer Chairman and Founder
DONATE (A-T Children’s Project)
- Wobbly Feet Foundation is a proud supporter of the A-T Children’s Project, providing funds annually in which to maximize our resources and support new cutting-edge medical research annually! Visit both Wobbly Feet Foundation and the A- T Children’s Project web-pages to learn more of the current research making advances towards a formal treatment and cure for A-T!
The 4th Annual Greens for Genes Golf Tournament held in Sarasota, Florida at The Meadows Golf and Country Club on November 20th putts pasts fundraising goals!!
This years event saw over 96 golfers take to the course to raise awareness and funds for A-T research. With Connor manning the putting contest and taking names, it was a great, and successful, day!
Thank you to all who sponsored, donated items for our auction, our committee & volunteers and to the golfers, all who helped us drive past our fundraising goals, raising over $24,000… up from $19,800 in 2014!!!
The 6th Annual Pasta Bar for a Cure of Ataxia Telangiectasia, held in Englewood, Florida on October 17th, 2015, stomped all set fundraising goals!
With over 150 guests in attendance, donations mailed in starting months in advance and through others who participated in our online auction from home, we raised $38,000… up from $26,500 in 2014!!!
For this years event, we took a risk and moved our popular silent auction online.This opened up our audience to anyone in the U.S. and helped us to increase our auction revenue from $3,500 in 2014 to over $8,000! Thank you to Bidpal for providing the software, hardware and support while we navigated through our 1st year in the digital fundraising world!
Thank you to all who supported from afar, came out to join us for the event! A special thank you to our event sponsors, especially Castle Air, to all who donated items and services, as well to our volunteers… all who helped to make this years Pasta Bar the most successful yet!!
100% of these funds have been allocated to medical research and will see action in 2016!!
Phase III clinical trials to start on first promising drug treatment to reduce the neurological symptoms of A-T!!!