2015… what a year!

Thank you to all who supported Wobbly Feet Foundation in 2015. Because of YOU we had our best year yet raising over $70,871 for research!!

Team Connor, Disney Wine and Dine Half Marathon (Orlando, Fl)- $1,920.00

Edith Mosolino Memorial Fund- $600.00

Pasta Bar for a Cure of A-T, October 2014 (Englewood, Fl)- $38,000

Greens for Genes Golf Tournament, November 2014 (Sarasota, Fl)- $24,000

Wifflemania, May 2014 (Monroe Township, NJ)- $500.00

Company matching programs- $200.00

Misc donations: $5,000+

Looking forward to an even more successful 2016!

 

 

2015 thank you

There is STILL TIME to make your 2015 donation count… click here to make your tax-deductible donation now! DONATE NOW!

2016 ending with HOPE in our future!

As 2016 comes to a close, families of a child with Ataxia Telangiectasia are hopeful. We’re hopeful because the dollars raised throughout the year, through hard work/grass-root efforts, IS making a difference! Please read the below letter from the President and Founder of the national foundation for Ataxia Telangiectasia, the A-T Children’s Project…

đź“Ś MESSAGE FROM BRAD MARGUS,

As you plan your year-end giving, we know that there are a lot of good causes out there, but please consider supporting the A-T Children’s Project.

We really need your help right now so that we can jump on new scientific opportunities to solve the problems A-T kids have with lost muscle control, cancer, immune deficiencies and lung problems.

Your help will enable our scientists to make additional progress in 2016, especially toward treatments that may help the neurological problems of A-T.

Scientists can now make stem cells from A-T kids’ skin and blood cells and then turn them into brain cells that can serve as disease models and possibly treatments. Emerging gene editing technologies such as CRISPR-Cas9 make a host of new experiments possible. Breakthoughs in whole-genome sequencing may help us find genes that determine the severity of A-T. And, improved imaging approaches may reveal defective brain circuitry in A-T.

It kills me that I can’t tell you today that we’ve found a treatment for children with A-T, including my sons Jarrett and Quinn. But I assure you that we are as driven and relentless as ever and will never slow down until we can give A-T kids the lives that they deserve.

I wish you and your family a happy and healthy 2016. We look forward to keeping you posted on our research advances.

All the best,
Brad Margus
Volunteer Chairman and Founder
DONATE (A-T Children’s Project)

  • Wobbly Feet Foundation is a proud supporter of the A-T Children’s Project, providing funds annually in which to maximize our resources and support new cutting-edge medical research annually! Visit both Wobbly Feet Foundation and the A- T Children’s Project web-pages to learn more of the current research making advances towards a formal treatment and cure for A-T!

4th Annual Greens for Genes is a driving success!

The 4th Annual Greens for Genes Golf Tournament held in Sarasota, Florida at The Meadows Golf and Country Club on November 20th putts pasts fundraising goals!!

This years event saw over 96 golfers take to the course to raise awareness and funds for A-T research. With Connor manning the putting contest and taking names, it was a great, and successful, day!

Thank you to all who sponsored, donated items for our auction, our committee & volunteers and to the golfers, all who helped us drive past our fundraising goals, raising over $24,000… up from $19,800 in 2014!!!

2015 G4G  4th Annual Greens for Genes pics!

6th Annual Pasta Bar for a Cure of A-T breaks records!

The 6th Annual Pasta Bar for a Cure of Ataxia Telangiectasia, held in Englewood, Florida on October 17th, 2015, stomped all set fundraising goals!

With over 150 guests in attendance, donations mailed in starting months in advance and through others who participated in our online auction from home, we raised $38,000… up from $26,500 in 2014!!!

For this years event, we took a risk and moved our popular silent auction online.This opened up our audience to anyone in the U.S. and helped us to increase our auction revenue from $3,500 in 2014 to over $8,000! Thank you to Bidpal for providing the software, hardware and support while we navigated through our 1st year in the digital fundraising world!

Thank you to all who supported from afar, came out to join us for the event! A special thank you to our event sponsors, especially Castle Air, to all who donated items and services, as well to our volunteers… all who helped to make this years Pasta Bar the most successful yet!!

100% of these funds have been allocated to medical research and will see action in 2016!!

2015 Pasta Bar pics2015 PB4AT

Phase III clinical trial announced!

Phase III clinical trials to start on first promising drug treatment to reduce the neurological symptoms of A-T!!!

Erydel announces phase III clinical trail of EryDex

 

 

Wifflemania 2015!

Thank you to Andy Stern for again hosting and to all the sponsors, teams, family and friends who came out to support Wifflemania 7 in Monroe Township, NJ on June 20th! It was an honor to have the Akian family there and for Avi to throw out the first pitch to get the day started!! Funds raised have already been received and allocated towards medical research of A-T! We are looking forward to another successful Wifflemania in 2016!!

Over $500 raised for A-T research!!

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6th Annual Pasta Bar for a Cure of A-T, registration open!

The 6th Annual Pasta Bar for a Cure of A-T is OPEN for ticket & sponsorship registration at www.bidpal.net/pb4at! This years event, Oct 17th, is again on Dearborn St. in Englewood, FL under the beautiful tents & lights from US Tent Rental Dinner will feature our signature pasta experience by your favorite cooks, wine bar by Vino Loco Gourmet (commemorative wine glass provided) and decadent dessert by Ciao Gelato Venice Sarasota. Local favorite, Tropical Ave., is back to get you on the dance floor & Hello Gorgeous Photobooth will be there with props to snap fun pics (complimentary event photo postcards will be auto-printed for you to take home!). Our silent auction is moving to the web and will be open for on-line bidding starting October 10th, 2015 (Item donations greatly appreciated!) Looking forward to seeing everyone there for our most successful year yet!!

Tri-Net, Team Sharks, Walk for Wobbly Feet!

TriNet had a holiday fitness challenge (11/17/14 – 1/16/15) where colleagues joined teams, used fit bits and worked towards 10,000 steps per day or way more!  Steps could be earned by walking/running while wearing fit bits or manually entering walking/running/cycling/swimming on the exercise tracker page.

When teams were asked which charity they wanted to walk for, local Sarasota Tri-Net employees, Team Sharks, immediately suggested Wobbly Feet especially because the goal was to support kids and ideally go grass roots.  Team Captain, Jen, and others walked 40,000 steps a day where only 10,000 would keep us on track. “Frankly, our walk for Wobbly Feet became an obsession and we’ve been working hard since November 17th,” expressed Team Sharks member, and ongoing Wobbly Feet supporter, Erin McGinty.

At the finish line, Team Sharks came in 2nd place and by mid-February, TriNet will be donating $2,000.00 to Wobblyfeet.org as a result!

Erin explained, “The best part of this competition besides working hard for our health, was that the mission and importance of Wobbly Feet reached 20 people in California, Nevada, New Jersey and Florida who never before knew about this cause!”

A huge thank you to Tri-Net for hosting such a fun challenge and to Team Sharks for supporting Wobbly Feet one step at a time!

Learn more about TriNet and their HR programs at www.trinet.com

TriNet provides HR solutions to small to mid-sized businesses so you can focus on what your company does best. Tailored by industry, TriNet’s bundled HR products cover the core services of payroll, benefits, risk & compliance, an HR team and a cloud platform.

 

2014 Fundraising Wrap Up!

Thank you to all who supported Wobbly Feet fundraisers during 2014. Because of you we had our best year yet raising over $60,000 for research!!

Irish Celtic 5K, March 2014 (Lakewood Ranch, Fl)- $6,850.00

Bashaw Elementary Bobcat Run for Connor, March 2014 (Bradenton, Fl)- $3,130.00

Wifflemania, May 2014 (Monroe Township, NJ)- $200.00

Pasta Bar for a Cure of A-T, October 2014 (Englewood, Fl)- $26,530

Greens for Genes Golf Tournament, November 2014 (Sarasota, Fl)- $19,825.00

2014/2015 Cardinal Health grant program- $7,000.00

Company matching programs through Wobbly Feet supports- $1,600.00 +

Looking forward to an even more successful 2015!

2014 Pasta Bar, Englewood Sun Herald

Thank you to Debbie Flessner and the Englewood Sun Herald for this beautiful article bringing awareness of A-T to the community and for supporting the 2014 Pasta Bar for a Cure of A-T! Don’t miss this event! Sponsorship and tickets available at www.WobblyFeet.org/event

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